Aotearoa Genomic Data Repository: The journey to a production repository…and beyond!
The Aotearoa Genomic Data Repository (AGDR) is a joint initiative between Genomics Aotearoa and NeSI to provide a secure within-nation repository for the storage, management and sharing of non-human genomic data generated from biological and environmental samples originating in Aotearoa New Zealand. Developed following the principles of Māori Data Sovereignty, and enabling data management through kaitiakitanga, the AGDR allows iwi, hapū and whānau to effectively exercise their responsibilities as guardians over biological entities they regard as taonga.
Four years since the initial launch, the team will review the journey thus far, the design decisions and progress, lessons learnt, the response from the community both in terms of researchers submitting and accessing data, and kaitiaki carrying out their responsibilities for the taonga data. We will also present some thinking on the future directions of the repository and where we are headed over the next five years.
ABOUT THE AUTHORS
Professor Mik Black is a statistician, bioinformatician and data scientist whose research focuses on the development of methods for the analysis of genomic data, with a strong emphasis on cancer and other human diseases. A common theme is the use of techniques that allow high-dimensional and often very disparate data sets to be combined in ways that provide new insights into disease development and progression. In addition to his own work, Mik has been heavily involved in establishing national research infrastructure in high performance computing through the NZ eScience Infrastructure, and in genomics and bioinformatics through Genomics Aotearoa, where he is Co-Director and chair of the Bioinformatics Leadership Team.
Dr Claire Rye is a Product Manager at New Zealand eScience Infrastructure (NeSI) based out of the University of Auckland. She is responsible for the National Data Transfer Service and works across the Aotearoa Genomics Data Repository and Rakeiora Pathfinder projects and looking at research data management and data lifecycle more generally across NeSI. Claire holds a PhD in organic chemistry and has spent the last 11 years working in the UK in a variety of research settings.
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For more information about the eResearch NZ / eRangahau Aotearoa conference, visit:
https://eresearchnz.co.nz/
